CML Advocates Network appoints Denis Costello as its first-ever Executive Director

About Denis Costello

Denis comes to our CML family from EURORDIS, Rare Diseases Europe, where he worked since 2008 as the organisation’s Online Communications Manager.

During that time he has led the launch and operation of RareConnect, a global, multilingual social network for patients and families living with rare diseases (see www.rareconnect.org) which saw him work with over 1000 patient organisations of all sizes and from all over the world who now use the platform to host their online patient communities.

Denis was also part of the initial team which oversaw the online awareness campaign around Rare Disease Day (held on the last day of February, see www.rarediseaseday.org). Rare Disease Day now enjoys an active participation from over 90 countries. 

He also launched the EURORDIS Digital School, a capacity-building program for patient representatives, to build their skills in the use of digital technologies in their daily advocacy work.  

His international advocacy experience also saw Denis work with the Spanish Federation for Rare Diseases (FEDER) in several meetings involved in the founding of ALiBER an intercontinental advocacy alliance between Spain, Portugal and Central and South American rare disease federations to further the cause of people living with a rare disease in these countries.

As Executive Director of CML Advocates Network Denis looks forward to bringing his experience in these areas to our work and also to support and grow existing and new projects which can serve the network’s members.