New European recommendations on rare cancers

There are an estimated 5.1 million people living with a rare cancer across Europe and 200 types of rare cancers. The rare disease community and the rare cancer community are sometimes regarded as two different worlds. But this is far from the reality, as patients and their families share the same burden and face similar challenges created by the rarity of their conditions.

Based on the work done through the European Joint Action on Rare Cancers (2016 – 2019), the recently published Rare Cancer Agenda 2030 book sets out 10 recommendations to improve rare cancer care through effective policies.

RARECONNECT

New RareConnect patient community for RUNX1-familial platelet disorder (RUNX1-FPD)

28 passionate youth advocates have joined the Rare2030 Foresight Study – read their stories!

Watch European Commissioner for Equality Helena Dalli's recent speech at the European Conference on Rare Diseases & Orphan Products.

Learn about the EURORDIS Digital School on Social & Digital Media, a fully online, free programme for patient advocates! 

Presentations from the recent RDI global meeting are now available

World landmarks shined a light for Rare Disease Day 2020 – inspiration for your Rare Disease Day 2021 planning?!

New preferential rates to access on-demand recordings of all 29 conference sessions! 

Nominate your rare disease star for one of the 13 EURORDIS Black Pearl Awards 2021!

Use the new EURORDIS call to action for policy makers on how to protect people living with a rare disease post confinement to advocate in your country

Attend the Patient Engagement Open Forum series of virtual events on patient engagement in medicines R&D.

New Solve-RD infographic & poster illustrating the rare disease diagnostic odyssey

Register for tomorrow's webinar on how to build a data strategy for the European Reference Networks

New World Economic Forum Precision Medicine Vision Statement

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This publication (or activity) has been funded with support from the European Union's Health Programme. This material only reflects the views of the author, and funders cannot be held responsible for any use which may be made of the information contained herein.

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