But the main concern is no longer the medical one. After 18 months of the temporary leave, the public administration, despite all the medical reports provided, determined that I was prepared to continue my usual work in a miraculous way.
As a result of this impossible requirement, I started a personal battle against the Social Security organisms in Spain to achieve a fair recognition of my disability and health rights in the Court. The final resolution is still pending since 2018.
In fact, my legal situation is a long-term unemployed person, with a recognition of 40% of disability, entitled to a very limited monthly allowance as I am over 52 years old, living on savings and the pension plan…but 15 years earlier than expected. Financially surviving to my cancer is an extremely difficult challenge to face.
It is really hard to say what it hurts me the most: if living with side effects of my treatment, which are very similar for me under Imatinib, Dasatinib or Bosutinib drugs, or living with the uncertainty of the Court’s decision and my labor precariousness due to my CML diagnosis.