Now, more than ever, we need international action on rare diseases
The current pandemic underscores the importance of ensuring universal health coverage (UHC) for everyone, including people affected by rare diseases.
In 2019, UN Member States committed to UHC that is inclusive of rare diseases. Now it is time to make this a reality. At the end of 2019, Rare Diseases International (RDI) signed a memorandum of understanding with the World Health Organization (WHO) and preparations are now underway for the establishment of a WHO Collaborative Global Network for Rare Diseases.
From September, RDI and EURORDIS will also launch a campaign to encourage their member patient organisations to advocate at the national level for the implementation of UHC that is inclusive of rare diseases. Read more on how you can get involved!
|RARE DISEASE DAY 2021|
|EURORDIS BLACK PEARL AWARDS|
|EURORDIS ROUND TABLE OF COMPANIES|
|WHAT'S NEW AT EURORDIS?|
|PATIENTS ADVANCING RESEARCH|
|RARE DISEASE AWARENESS DATES|