– Jana Pelouchová, co-founder of the CML Advocates Network and President of Diagnoza Leukemie, Czech Republic –
My name is Jana and I’m living my 19th year with CML and I’m enjoying it because last Christmas I have reached MR4 surrounded by my family including two grandchildren who were born during my treatment and whom I have not anticipated to see as school-children and beyond.
When I was diagnosed with CML I was completely lacking information on what my daily life would look like. I remember searching through my diary when the doctor phoned me after taking my bloods “a haematologist wants to see you” – to find a suitable time for an appointment! As if there were a good time for diagnosis. From full health into hospital bed for having leukopheresis done, and I thought, when being driven home each night (as if it happened yesterday) if the blurred vision would remain, I won’t be able to drive my car anymore.