


- POČETNA
- O NAMA
- AKTUALNO
- MEĐUNARODNE ASOCIJACIJE
- KONTAKT
- POVEZNICE
- PRAVA PACIJENATA
- ORGANIZACIJE
- Hrvatsko društvo za hematologiju hrvatskog liječničkog zbora (HRDH)
- Hrvatska kooperativna udruga za hematološke bolesti – KROHEM
- The European Hematology Association (EHA)
- The European Group for Blood and Marrow Transplantation (EBMT)
- The European Organisation for Research and Treatment of Cancer (EORTC)
- European LeukemiaNet
- The American Society of Hematology (ASH)
- The American Society for Blood and Marrow Transplantation (ASBMT)
- The International Society of Hematology (ISH)
- The American Society of Pediatric Hematology/Oncology (ASPHO)
- The Society for Hematology and Stem Cells (ISEH)
- The International Myeloma Foundation (IMF)
- The Society for Immunotherapy of Cancer (SITC)
- The International Society on Thrombosis and Haemostasis (ISTH)
- The Society for Hematopathology
- The American Society of Clinical Oncology (ASCO)
- The European Society for Medical Oncology (ESMO)
- ČASOPISI
HULL PRENOSI NEWSLETTER LYMPHOMA COALITIONA (LC) ZA MJESEC RUJAN 2021. GODINE
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Anita’s life as an advocate began after her much-loved son Oliver very sadly succumbed to leukaemia in 1992. Taking one’s grief and channeling it into making the situation better for others who face similar circumstances takes a very special person. She learned as she went, building organisations and using her voice to ensure patient needs were prioritised and that they had access to the treatments and support they needed. She became not only a champion of patients, but also a supporter of every other advocate she met. I am sure we all have stories of how Anita has shared her wisdom with us over the years, gently guiding us, connecting us to people who could help us meet our objectives, encouraging us in our own work.
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LC Research
In the past month we were able to share LC research findings at two top conferences.
International Workshop on Chronic Lymphocytic Leukaemia (iwCLL)
17-20 September 2021
The iwCLL meeting provides a forum for exchanging information and encouraging collaboration among international leaders and scientists interested in CLL and lymphoproliferative disorders.
LC's abstract at iwCLL examined how knowledge of genetic and biomarkers affect the information and communication experiences of patients with CLL. You can read there full abstract HERE.
Lymphoma Coalition's CEO, Lorna Warwick, joined a panel discussion on the patient experience alongside fellow patient advocates: Deborah Sims from Australia who shared her experience as a patient, Brian Koffman, Chief Medical Officer and Founder of CLL Society, and Zack Pemberton-Whiteley, CEO of Leukaemia Care. The panel highlighted observations and results of patient advocacy led experience surveys, showing how physicians, charities and patients can work together to improve the patient experience and improve outcomes. The panel was facilitated by Prof John Seymour from Australia, a member of LC’s Medical Advisory Board.
Information on key learnings form iwCLL will be coming soon.
European Society for Medical Oncology (ESMO) Congress:
16-21 September 2021
The 2021 ESMO meeting was an opportunity to connect professionals with diverse expertise to experience an integrated multi-professional approach to cancer care, from a medical oncology perspective
LC's abstract described the barriers to treatment for patients with lymphoma across Europe: Upper middle income versus high income countries. The results show that patients with lymphoma differ in how they experience ‘barriers to care’ across country income classification in Europe. Lymphoma Coalition advocates that more effort should be put into ensuring equitable access to lymphoma care across European countries. You can read there full abstract HERE.
Thank you to everyone for participating in the Global Patient Survey 2020. These abstracts are one of the ways this data was used. The 2022 survey will launch in January.
All of LC's research is available here.
September's Top Academic Articles
Treatment News
Lymphoma Hub Satellite Symposium at ICML 2021: Summary and roundtable discussion on the sequencing of therapies in high-risk relapsed/refractory lymphoma and chronic lymphocytic leukemia (CLL). https://lymphomahub.
Prognostic impact of six versus eight cycles of standard regimen in patients with diffuse large B-cell lymphoma
https://www.esmoopen.com/
Comparison of best supportive care, CHOP, or R-CHOP for treatment of diffuse large B-cell lymphoma in Malawi
https://www.thelancet.com/
Early relapse in first-line follicular lymphoma: A review of the clinical implications and available mitigation and management strategies
https://link.springer.com/
ASTCT, CIBMTR, and EBMT clinical practice recommendations for transplant and cellular therapies in mantle cell lymphoma
https://www.nature.com/
Predicted risks of cardiovascular disease following chemotherapy and radiotherapy in the UK NCRI RAPID trial of positron emission tomography–directed therapy for early-stage Hodgkin lymphoma
https://ascopubs.org/doi/full/
Efficacy and safety of CAR-T cell products Axicabtagene Ciloleucel, Tisagenlecleucel, and Lisocabtagene Maraleucel for the treatment of hematologic malignancies: A systematic review and meta-analysis
https://www.frontiersin.org/
Research News
Identification of key mutations in central nervous diffuse large B-cell lymphoma (DLBCL) by comprehensive analysis between sequencing and TCGA database
https://tcr.amegroups.com/
Progress in molecular feature of smoldering mantle cell lymphoma
https://ehoonline.
Benzene exposure and non-Hodgkin lymphoma: a systematic review and meta-analysis of human studies
https://www.thelancet.com/
Lymphoma patients show continued cognitive decline after chemotherapy
https://www.
Impact of COVID
Management of chronic lymphocytic leukemia in Italy during a one year of the COVID-19 pandemic and at the start of the vaccination program. A Campus CLL report report https://onlinelibrary.
Subscribe to the Lymphoma Monitor Newsletter, a monthly collection of the latest articles & research from our Resource Library.
Podijeli


Hrvatska udruga leukemija i limfomi
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