- POČETNA
- O NAMA
- AKTUALNO
- MEĐUNARODNE ASOCIJACIJE
- KONTAKT
- POVEZNICE
- PRAVA PACIJENATA
- ORGANIZACIJE
- Hrvatsko društvo za hematologiju hrvatskog liječničkog zbora (HRDH)
- Hrvatska kooperativna udruga za hematološke bolesti – KROHEM
- The European Hematology Association (EHA)
- The European Group for Blood and Marrow Transplantation (EBMT)
- The European Organisation for Research and Treatment of Cancer (EORTC)
- European LeukemiaNet
- The American Society of Hematology (ASH)
- The American Society for Blood and Marrow Transplantation (ASBMT)
- The International Society of Hematology (ISH)
- The American Society of Pediatric Hematology/Oncology (ASPHO)
- The Society for Hematology and Stem Cells (ISEH)
- The International Myeloma Foundation (IMF)
- The Society for Immunotherapy of Cancer (SITC)
- The International Society on Thrombosis and Haemostasis (ISTH)
- The Society for Hematopathology
- The American Society of Clinical Oncology (ASCO)
- The European Society for Medical Oncology (ESMO)
- ČASOPISI
HULL DONOSI ECPC (EUROPEAN CANCER PATIENT COALITION) NEWSLETTER
Hrvatska udruga leukemija i limfomi (HULL) članica je ECPC-a i sudjeluje u radu i aktivnostima te međunarodne asocijacije pacijenata koja okuplja udruge oboljelih od raka. U nastavku možete pročitati newsletter te zajednice pacijenata oboljelih od raka u EU, nedavni politički razvoj, obavijesti o nadolazećim događajima i druge uzbudljive novosti.
Dražen Vincek
BECA Committee draft a report on “Strengthening Europe in the fight against cancer – towards a comprehensive and coordinated strategy” |
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The EJP RD Research Mobility Fellowships funding opportunity is now open until November 28th! The call aims to support PhD students, Postdocs and medical doctors in training to undertake scientific visits fostering specialist research training outside their countries of residence. This free course has been designed to provide non-experts with the knowledge they need to better understand the importance of real world data, how it’s protected, and the vital role they can play in the healthcare ecosystem and health research. On the 29th September 2021 took place the ‘Let’s break the taboo around cancer & sexuality’ webinar. During this event the ECL Patient Support Working Group’s leaflets were presented. They are now available and you can check them out by clicking on the following links: patients’ leaflet & healthcare professionals’ leaflet. The study, named EUPROMS 2.0, is based on an online survey which takes only 25 minutes to complete. You can take part on it until the 23rd of December.
Advanced Renal Cancer & Advanced Liver Cancer
This is a project funded by the European Oncology Nursing Society about patients with advanced liver or advanced kidney cancer who are treated with targeted therapies. The objective is to find out what outcomes / areas these patient groups consider as priority in their care, and help clinicians offer better support. For more information, please see here.
ERN Research Training Workshops funding opportunity
The exchange can be carried out within the same ERN (Full Members and Affiliated Partners), between different ERNs (Full Members and Affiliated Partners) and between ERN Full Members / Affiliated Partners and non-ERN institutions. More information on the application can be found here.
Launch of EHDEN Academy Patient/Patient Group Course on Real World Data, Evidence & EHDEN
To participate in the first module, check out the EHDEN Academy and choose the course after setting up a free account. Please circulate also to those with an interest in the patient community.
Cancer & Sexuality leaflets
REGISTRATIONS SOON
The event will take place on Thursday, 18th November 2021, from 15:30h to 17:00h CET. The online event is organised in the frame of the World Pancreatic Cancer Day 2021 activities.
REGISTER HERE
The European Antibiotic Awareness Day (EAAD) is a European health initiative, coordinated by the ECDC, which takes place on 18 November annually. This year’s online campaign will be launched with a session at ESCAIDE (18 Nov, 10:00-11:30). You can attend this session by registering to the conference.
REGISTER HERE
Please see the draft programme here.
REGISTER HERE
A multistakeholder group consisting of 60+ academic, industry, not-for-profit and patient organisations, jointly led by EFGCP and EFPIA, (“Roadmap Initiative for Good Lay Summary Practice”), compiled needs for transparency improvement on clinical study results, available guidance and experience when preparing and disseminating Lay Summaries (LS) in Europe and the US. Read more here.
REGISTER HERE
Check out the programme here.
REGISTER HERE
Podijeli
Hrvatska udruga leukemija i limfomi
predsjednik Dražen Vincek
Trg hrvatskih velikana 2/ll
10 000 Zagreb
GSM: +385 (0)91 4873 561
TEL: +385 (0)1 4873 561
e-mail: udruga.hull.zagreb@gmail.com
Web adresa: www.hull.hr
IBAN: HR 36 2340 0091 1100 4711 4
SWIFT CODE: PBZGHR2X