DONOSIMO BILTEN WORLD PATIENTS ALLIANCE ZA KOLOVOZ 2022.

U nastavku možete pročitati novosti o radu i aktivnostima World Patients Alliance za kolovoz 2022. godine (WORLD PATIENTS ALLIANCE NEWSLETTER AUGUST 2022).

Dražen Vincek

Izvor: World Patients Alliance (WPA)

1st World Patients Conference

Register Now

Join us for the 1st World Patients Conference from 15th and 16th of Oct 2022 in Rome, Italy. The theme of the conference is New Normal, New Challenges For Patients. It will provide the international platform to empower and raise the patients’ voice for the provision and access to safe, quality, and affordable healthcare globally. The two-day hybrid conference will bring together global leaders of patient’s organizations, healthcare stakeholders, and leading patient advocates from all around the world and …. Read More

WPA Welcomes New Members

The membership of the WPA continues to grow quickly. The WPA has welcomed 42 new members since the beginning of the current year. We look forward to  working with our new members making the WPA the global voice of patients working toward patient empowerment and engagement, improved access to safe innovative treatment, and patient centered healthcare throughout the world.

We are delighted to announce that we have over 368 patient member organizations in over 113 countries, representing all disease areas.

1.    National Alliance for Rare Diseases Support – Malta

2.    Lake Health and Wellbeing

3.    Russian association on osteoporosis

4.    Charter of “Fighting Leukemia” Public Union

5.    HEALTHY

6.    Mathiwos Wondu-YeEthiopia Cancer Society

7.    ASHIC, Foundation for Childhood Cancer

8.    Fertility Europe

9.    FINCOPP-Italian Federation of Pelvic Floor Incontinents And           Disfictions     

10.  Associazione Italiana Stomizzati A.I.STOM. O.D.V.

11.  Campaigning for Cancer

12.  Breast Care International (BCI)

13.  SEN Slovakia/Cesko

14.  Pain Support Organisation

15.  Trinity Healthcare Foundation

16.  Dup15q Alliance

17.  Cancer Association of Namibia (WO30)

18.  Crohn’s and ulcerative colitis association vzw

19.  Pun Yaung Hnin Si (Pink Rose) Breast Cancer Patients 

       Support Group

20.  ABRALE – Brazilian Lymphoma and Leukemia Association

21.  Oncoguia

22.  SAID NGO

23.  Lugei Foundation Uganda

24. EN. Stroke – Union of Survivors, Family and Friends

25.  Australia Alopecia Areata Foundation Inc

26. For a Stroke-Free Life

27.  MULTIPLE SCLEROSIS ASSOCIATION OF LANKA

28.  Psoriatic and Atopic Eczema Association Czech Rep.

29.  Eczema Outreach Support

30. Algerian Alliance against Rare Diseases

31.  World Federation of Public Health Associations

32. Portuguese Association of Prostate Patients

33. Asociación Tejido Azul

34. Colombian Federation of Rare Diseases (FECOER)

35. United Mission to Rural Area(UNMIRA) Nepal

36. Asociación Guatemalteca Héroes de Esperanza

37. ANAQ Foundation for Sickle Cell & Nutrition 

38. Ukrainian Hemophilia Association

39. Women’s Hope Foundation (WHF)

40. DEBRA South Africa

41. Niger League Figth againt Cancer

42. Global media foundation

Events & Activities

Workshop on Patient Empowerment & Community Engagement in Patient Safety

Patient empowerment is a process through which patients individually and collectively have increased capacity to express their needs, present their concerns and take action to meet those needs in partnership with the healthcare providers. The Jeddah Declaration on Patient Safety highlights the significance of patient empowerment and engagement in the improvement of healthcare globally.

Read More

Biosimilars Training Program

Biosimilar Training Program was held from May 10-11, 2022, which educated patient advocates from all over the world on the health and economic benefits of biosimilars as well as the challenges they create for patients. The WPA partnered with the Global Colon Cancer Association and the Alliance for Safe Biologic Medicines to provide this extensive training program. Read more

Fundraising Webinar

The World Patients Alliance held a successful Fundraising Webinar on March 3, 2022. Renowned speakers from all over the world participated that included fundraising experts, patients advocates and industry partners representatives. Read More

World Health Day Conference 

The World Patients Alliance in collaboration with the Patients Safety Foundation Poland to organize a conference commemorating the World Health Day on April 2, 2022, at Lodz, Poland. 

Read More

WPA Membership Survey 2022 Results

WPA created a  survey with all our member organizations. The survey was launched at the beginning of 2022 in English and Spanish languages. We thank 62% of our members for completing the online survey. The results of this survey have informed us how to best serve and understand the needs of our member organizations. WPA patient organization members represent hundreds of millions of patients globally.  Through this survey we were able to gain insight into their needs.

Survey Report

News

World Health Assembly

The 75th session of the World Health Assembly (WHA) ended with a broad agreement that a stronger World Health Organization (WHO) is needed and there is a requirement for better planning to manage global health crises. Read More

Partnerships

WPA has also entered into partnership with World Federation of Public Health Associations (WFPHA), which is the only worldwide professional society representing and serving the broad field of public health internationally to have influence in the health of the people in todays’ globalized world.

Read More

WPA is glad to announce our strategic partnership with International Society for Quality in Health Care (ISQua), which is a leading international organization dedicated to promoting quality improvement in health care. ISQua’s mission is to inspire and drive improvement in the quality and safety of health care worldwide

Read more

Blog

Nursing Matters – Respecting Patients is of Global Importance!

Dr. Michelle Acorn, Chief Nurse, International Council of Nurses writes a blog for WPA and sheds light on the critical role nurses play in providing the required healthcare to patients globally. Moreover, it also highlighted the importance of person-centered healthcare and emphasized partnership between patients and nurses for individual and health system positive outcomes. click here 

Upcoming Event

Join WPA’s 1st African Regional Meeting on 25th of August 2022. The African Regional Meeting will bring together over 90 WPA member patient organizations in 26 countries of the African region along with other healthcare stakeholders to discuss African healthcare issues and problems and initiate a regional campaign to work together for  their solutions. Read More

Register Now

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