DONOSIMO NAJNOVIJI BILTEN EURORDIS-A (RARE DISEASES EUROPE) - EUROPSKE UDRUGE OBOLJELIH OD RIJETKIH BOLESTI
On 25-26 October, the Czech government will host a milestone conference that should take us one step closer to the delivery of an EU-wide rare disease strategy. Ahead of the conference, EURORDIS and the Czech Presidency of the Council of the EU have been calling for a European Action Plan for Rare Diseases since it emerged as the main recommendation of the Rare 2030 study in 2021.
Read more about what we hope will come out of the conference, and why we are calling for an Action Plan.
Hrvatska udruga leukemija i limfomi
predsjednik Dražen Vincek
Trg hrvatskih velikana 2/ll
10 000 Zagreb
REG. BR.: 00000797
GSM: +385 (0)91 4873 561
TEL: +385 (0)1 4873 561
Web adresa: www.hull.hr
IBAN: HR 36 2340 0091 1100 4711 4
SWIFT CODE: PBZGHR2X