We are delighted to announce that CLL Advocates Network (CLLAN), in partnership with AstraZeneca, has worked with global experts and advocates to develop a White Paper titled “Compromised: Uncovering the immune-related challenges facing people with chronic lymphocytic leukaemia (CLL)” which we are launching today.
 
As we all know, the COVID-19 pandemic has shone a spotlight on the varied immune challenges, in addition to infections, that people with CLL face. This forms a major part of managing day-to-day life with CLL and has long been overlooked in CLL management and care.
 
We are immensely proud of the paper which sets out recommendations needed to achieve improvement in the management of immune challenges for CLL patients.
 
The report highlights the following 4 key recommendations:

1. Creating global clinical guidance for monitoring and managing immunosuppression in people with CLL
2. Ensuring that immunocompromised status is flagged in the patient health records of people with CLL
3. Instigating education and awareness raising activities amongst healthcare professionals, especially primary care physicians
4. Making shared decision-making and personalised approaches commonplace in the management and care of people with CLL

We are incredibly grateful to all the individuals and organisations who have contributed to co-create this one of a kind new White Paper.
 
Please spread the word with your members, colleagues and wider network!

To read the full white paper please click here: www.clladvocates.net/whitepaper-CLL-immune-challenges/

EHA 2023 is just around the corner. From 8-11 June 2023 the hematology community is meeting in Frankfurt / Germany, with the possibility of virtual participation given the hybrid nature of the event. CLLAN will be strongly represented with 6 CLLAN Steering Committee members and staff members being on site to attend this one-of-a-kind event.

The European Hematology Association (EHA) promotes excellence in patient care, research, and education in hematology. They serve medical professionals, researchers, and scientists with an active interest in hematology. They are proud to be the largest European-based organization connecting hematologists worldwide to support career development and research, harmonize hematology education, and advocate for hematologists and hematology.

The EHA2023 Hybrid Congress offers an interactive, comprehensive program dedicated to clinical research and practice, basic and translational research, as well as important opportunities for collaboration with stakeholders in the field of hematology. The educational and scientific program will highlight state-of-the-art clinical practice, the latest findings in hematology research, and recent approaches on the diagnosis and treatment of hematologic diseases.

Visit us at the Patient Advocacy Hub, the joint booth of patient organisations in the exhibition hall. Also please don´t miss our Hybrid Global Patient Advocacy Exchange event on Saturday 10 June 19:30-21:45 CET at the NHOW Hotel Frankfurt. Dinner will be provided. This event will be held in a hybrid format, allowing you to attend virtually if preferred. For details, please refer to the article above.

We look forward to seeing many familiar and new faces in Frankfurt!