HRVATSKA UDRUGA LEUKEMIJA I LIMFOMI (HULL) SUDJELOVALA NA 18-OJ (VIRTUALNOJ) SVJETSKOJ KONFERENCIJI CML AN KOJA SE ODNOSILA NA OBOLJELE OD KRONIČNE MIJELOIČNE LEUKEMIJE (KML) - Highlights from Day 1

U vremenu od 6-8.studenog 2020. godine (petak-nedjelja), Hrvatska je, između gotovo 400 sudionika iz 87 zemalja svijeta, sudjelovala na 18-oj (virtualnoj) konferenciji CML AN, a koja se odnosila, kao i dotadašnjih 17, na oboljele od kronične mijeloične leukemije (KML), a sadržaj konferencije možete pogledati u nastavku.

Dražen Vincek

For CML Horizons Virtual 2020 Attendees

Highlights from Day 1

 

 

 

CML Horizons Virtual Conference 2020

 

The 18th edition of the CML Horizons Conference started yesterday 6th November as a virtual event with a record of participants: almost 400 attendees from 87 countries to this annual meeting of the global CML patient advocacy community.
During the Advocacy #1 session, it gathered over 200 participants from all regions, making it the largest CML Horizons conference ever.


Thank you for your engagement and amazing CML advocacy to all of you!
 

 

 

 

 

 

 

 

 

 

 

The Opening was held by our co-chairs Sarunas Narbutas and Felice Bombaci, followed by José Castro, regional representative of the Latin American region and the CML Advocates Network Executive Director, Denis Costello.
 

 

 

 

 

 

 

 

The Medical #1: Past, Present & Future session offered attendees four exciting presentations run by these key CML experts: Dr. Raanani, Dr. Druker, Dr. Cortés and finally, Dr. Lipton focused on topics as what CML looked like 25 years ago,  perspectives on the development and new generation of TKIs, and transplants options.

 

 

 

At Advocacy #1 session, five CML patient advocacy leaders from the different regions were presenting inspiring activities developed in their own countries during the current COVID-19 outbreak.

  • Andrian Rakhmatsyah talked about how has COVID-19 affected patient support.
  • Giora Sharf shared his experiences on patient organisations adapting activates to COVID-19 reality.
  • Eunice Orekha focused on access during the #COVID-19 pandemic.
  • Jelena Čugurović shared the information about the CML Advocates Network regional project developed in 2020, "CML Atlas- novel way of gathering data from the region".
  • Mercedes Arteaga presented "Venezuela access to Bosulif".

 

 

 

 

The training day finished with an informal meeting joined by a large number of patient advocates to meet colleagues, friends and share greetings.

Don't forget to join the Networking Lounge meeting today at the end of the conference sessions! Please, click on:


Day 2 Networking Lounge 

Meeting ID: 986 8528 1335
Passcode: 772535

Podijeli

Zagreb, HR
3°C
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Hrvatska udruga leukemija i limfomi
predsjednik Dražen Vincek
Trg hrvatskih velikana 2/ll
10 000 Zagreb
GSM: +385 (0)91 4873 561
TEL: +385 (0)1 4873 561
e-mail: udruga.hull.zagreb@gmail.com
Web adresa: www.hull.hr
IBAN: HR 36 2340 0091 1100 4711 4
SWIFT CODE: PBZGHR2X

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