HULL PRENOSI OBAVIJEST CML ADVOCATES NETWORKA

For Chronic Myeloid Leukemia Patient Group Advocates

Central and Eastern Europe and West Asia region,  
December 2020
 

CML Atlas East Europe is the final product of East Europe and West Asia regional project run by the CML Advocates Network from 1st December 2019 to 31st March 2020.

The activity started with a regional survey reaching our Eastern European patient members addressing a sample of respondents of CML advocates and CML doctors based in 19 countries from the Central and Eastern EU region. 

An online questionnaire was created by using cloud-based online survey development software to collect data on general information about CML, availability of TKIs, availability of PCR, running clinical trials, and treatment-free remission data.

Results of this collection have been published on a website
 http://ceeatlas.cmladvocates.net where we can navigate through the menu section and be informed about key topics and issues in the different countries.

Visit the CML Atlas East Europe webpage
 
General information about CML
In this section, you can find the number of CML patients, number of CML organisations in each country, number of hospitals treating chronic myeloid leukemia, number of treating hematologists, hospital registries and/or national registries, etc.
 
Availability and cost of medicines
List of available drugs, their different coverage and percentage of patients with access to each treatment and comparison of drugs’ prices including coverage and donations. 
 
PCR availability and prices
Prices and availability of PCR in the Easter Europe region countries including access levels and co-payments. 
 
Treatment-free remission
Current situation of treatment-free remission (TFR): Availability and how TFR is attempted in clinical practice.
 
Clinical trials
Basic information on the ongoing clinical trials in all countries in the region.
 
Download the CML Atlas East Europe Brochure
Please, feel free to use these data to advocate on a local, regional and global level, comparing data with other countries/regions and comparing data with other networks. Any further use of the data needs to be done with the permission of the CML Advocates Network and referenced to the project of the Network.

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