HULL PRENOSI OBJAVU MPN ADVOCATES NETWORK-a POVODOM DANA RIJETKIH BOLESTI

MPN Advocates Network prenosi priču MPN Research Foundation (Istraživačke zaklade o mijeloproliferativnim neoplazmama), koja traje punu dvadeset i jednu godinu. Zaklada već više od dva desetljeća proučava inovativne pristupe prevenciji, novim terapijama i poboljšanju života ljudi koji žive s esencijalnom trombocitemijom, policitemijom verom i mijelofibrozom, bolestima poznatim pod imenom mijeloproliferativne neoplazme. Osnovali su je pacijenti za pacijente.

Zaklada igra jedinstvenu ulogu u rastućoj MPN zajednici, okupljajući akademske krugove, pacijente i zagovornike pacijenata, regulatorne agencije, sve kako bi se poboljšali životi oboljelih od ovih rijetkih bolesti. Sva ulaganja idu u smjeru razumijevanja MPN-a, njihovih uzroka, prevencije i progresije. Primarni cilj je razvoj novih mogućnosti liječenja, poboljšanje kvalitete života pacijenata i konačno izliječenje.  

Ukoliko želite pročitati kompletno izvješće s izjavama istraživača i pacijenata, poveznicu na to naći ćete u donjem izvornom tekstu.

 

In Honor of Rare Disease Day, the MPN Advocates Network is pleased to share this 21-year research impact story of the MPN Research Foundation, featuring key voices in the MPN community.

Born of necessity. Raised by determination.
Driven to mind the gap.

The MPNRF plays a uniquely independent role in the expanding global MPN community, convening academia, industry, patients, advocates and regulatory agencies; catalyzing and funding collaborative research across institutions and scientific disciplines. The goal: to discover better treatments and improve quality of life for people living with essential thrombocythemia, polycythemia vera and myelofibrosis.

The MPN Advocates Network is proud to share the voices of leading MPN researchers, clinicians, advocates and people living with ET, PV and MF in a recently produced MPNRF digital report MPN IMPACT@21 featuring the foundation’s impact on MPN research, clinical treatments, biopharma drug development, and most importantly MPN patients.

We invite you to read how far we have come as a community dedicated to MPN answers, and about how the foundational research driven by the MPNRF supports the next chapter of our collective story − as it drives a bold commitment to find and fund global pioneers studying innovative approaches to new MPN therapies, disease progression and prevention.

View the IMPACT@21 report here: https://www.mpnresearchfoundation.org/impact/

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