DONOSIMO BILTEN OTVORENE AKADEMIJE EURORDIS ZA TRAVANJ 2022. - O RIJETKIM BOLESTIMA

Bilten Otvorene akademije EURORDIS (RIJETKE BOLESTI EUROPA) za travanj nudi mnoštvo prilika za stjecanje znanja o izazovima i mogućnostima u području dijagnostike rijetkih bolesti, o volonterima, snimanju videozapisa pametnim telefonom i drugo. Detaljnije možete pročitati u izvornom tekstu ovog biltena u nastavku.
Izvor: EURORDIS /Rijetke bolesti Europa

The Open Academy April Newsletter features plenty of opportunities for you to gain more knowledge about the challenges and opportunities in the rare diseases diagnostic fieldaccess and reimbursement, how to recruit and manage volunteers and how to film great videos with your smartphone. 

Do not miss them, keep reading!


NEW ONLINE COURSE ON CREATING GREAT MOBILE VIDEO 

Want to learn how to make professional and engaging videos with your smartphone and improve your filming skills to grow your audience? Take the EURORDIS Open Academy Creating Great Mobile Video e-learning course, and learn more about: 
📖 the importance of videos in story-telling
💡 understanding your audience
📹 tips for planning, recording, and editing better videos for social media. 
 
Start straight away and learn at your own pace!
ShareShare
TweetTweet
ForwardForward
 
MORE CAPACITY BUILDING OPPORTUNITIES FOR PATIENT ADVOCATES
The “Diagnosing Rare Diseases: from the Clinic to Research” online course on rare diseases diagnosis developed by Fondation Maladies Rares in the context of the European Joint Programme on Rare Diseases is now available! Join the course to discover the role of research, clinical investigation and data sharing in diagnosing rare diseases.
Enrol now!
 
Do you want to learn about access and reimbursement?
Sign up for the patient group exclusive ‘Understanding access and reimbursement’ online workshop.

When: 17th – 19th May, from 11h – 13h (BST) – REGISTER
Webinar series: Developing your rare disease patient group team
Sign up for the first webinar on how to successfully recruit and manage volunteers for your rare disease organisation.

When: Thursday 26th May 11h – 12:45h (BST) – REGISTER
 
Do you know a friend who might be interested in our online courses? Forward this newsletter to them! Do you have links, online courses, or webinars that would be interesting for the Open Academy alumni, a success story to share with us, a future training request or just want to say hi? Email us at openacademy@eurordis.org
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