PRENOSIMO BILTEN MPN ADVOCATES NETWORK-a ZA DRUGI KVARTAL 2022. GODINE

MPN Advocates Network obavještava o prvom razvojnom programu za zagovornike pacijenata s mijeloproliferativnim neoplazmama (ADP). Program je osmišljen kako bi omogućio sudionicima učinkovito zagovaranje pacijenata na političkoj i društvenoj razini. Važne teme su razumijevanje kliničkog istraživanja i razvoja, mehanizmi pristupa dijagnostici i lijekovima. Program je sastavljen od mjesečnih webinara. Novi sudionici su dobrodošli te, ako želite biti dio ovog projekta, kontaktirajte Mariju Stefkovu na: doneva@mpn-advocates.net
Ostale informacije pročitajte u izvornom tekstu.
 
Izvor: MPN AN
 
 

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MPN Advocates Network ADP project has kicked off!

We’re immensely excited for the first Advocate Development Programme (ADP) specifically developed for patient advocates for myeloproliferative neoplasms.

This training programme is designed to enable the participants to effectively advocate on behalf of their patient community on a political and societal level. Important topics are understanding clinical research and development, mechanisms of accessing diagnostics and drugs. Interaction with stakeholders such as clinicians and industry partners and the basics of evidence-based advocacy are an important part of the programme.

The monthly webinars are online sessions, with duration of 1.5 hours where each participant is able to learn from presentation by at least one expert speaker and a discussion amongst all participants to solidify and understand the learning objectives, and raise questions.

There are still new participants welcome, so if you would like to be part of the MPN AN ADP project, please contact Marija Stefkova: doneva@mpn-advocates.net

 

EHA 2022 Patient Advocacy Hub

After 2 years, we were all looking forward to finally attending face-to-face conference. The European Hematology Association – EHA 2022 Congress took place in Vienna, Austria with about 11.000 participants from all over the globe and 4.000 more attended virtually.

MPN AN team was delighted to be a part of the EHA 2022 Congress in Vienna, Austria. We were stationed at the Patient Advocacy Hub where patient advocates were able to learn more about our organisation, our projects and team.

 

SAVE THE DATE: MPN HORIZONS 2022

With great pleasure we would like to announce the dates for MPN Horizons 2022. November 18 – 20 are the dates you need to block on your calendar, and the venue will be further confirmed.

Keep track on our social media platforms and our website for more information!

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