DONOSIMO NAJNOVIJI BILTEN CLLAN (CLL ADVOCATES NETWORK NEWSLETTER) ZA MJESEC VELJAČU 2023.

U nastavku možete pročitati bilten CLLAN-a te se uključiti na webinare koji se organiziraju tijekom mjeseca ožujka 2023.

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CLL Matters

CLL Advocates Network Newsletter

 

REGISTRATION IS NOW OPEN!
Please join our four webinars in March 2023




We are pleased to announce that March webinars are now open for registration. This will be a joint initiative between three LePAF networks (CLLAN, ALAN, and CMLAN) and the UK charity Leukaemia Care. Webinars will be moderated and facilitated by leading patient advocates.

Register for these webinars as patient, advocate or stakeholder with an interest in chronic lymphocytic leukemia (CLL), acute lymphocytic leukemia (ALL), acute myeloid leukemia (AML) and chronic myeloid leukemia (CML).

For details on the four webinars and to access the webinar registration links, refer to the respective sections below:
 
14 March 2023
6:00 pm – 7:00 pm GMT / 7:00 pm – 8:00 pm CET
Webinar on “Latest advances in the treatment of acute lymphoblastic leukemia (ALL) – What does this mean for patients?”

WEBINAR REGISTRATION LINK 

 
21 March 2023
3:30 pm – 4:30 pm GMT / 4:30 pm – 5:30 pm CET
Webinar on “Latest advances in the treatment of acute myeloid leukemia (AML) – What does this mean for patients?”

WEBINAR REGISTRATION LINK 

 
27 March 2023
7:00 pm – 8:00 pm BST / 8:00 pm – 9:00 pm CEST / 11:00 am – 12:00 pm PDT
Webinar on “Latest advances in the treatment of chronic lymphocytic leukemia (CLL) – What does this mean for patients?”

WEBINAR REGISTRATION LINK 

 
28 March 2023
6:00 pm – 7:00 pm BST / 7:00 pm – 8:00 pm CEST / 1:00 pm – 2:00 pm EDT
Webinar on “Latest advances in the treatment of chronic myeloid leukemia (CML) – What does this mean for patients?”

WEBINAR REGISTRATION LINK 

 

 

CLLAN poster presentation at ASH 2022


Ahead of the last conference of the American Society of Hematology (ASH) held in New Orleans from 10-13 December 2022, CLLAN´s abstract entitled “From Survey to Resource Hub: Chronic Lymphocytic Leukemia (CLL) Global Support Provision“ had been selected by the ASH Program Committee for a poster presentation at the congress. This was a great opportunity for CLLAN to raise its profile, and we are grateful to our Steering Committee member Kathryn Huntley (Australia) for representing our network at this major scientific event and helping us become more visible in the scientific environment.
 


In addition to the live poster presentation during the poster session on Sunday, 11 December 2022, we had to submit a pre-recording of the poster presentation. Click here to access the virtual poster presentation. The abstract can be accessed by clicking here. 

For background information on CLLAN´s 2021 global survey, please visit the survey section on our website. The survey report and recommendations will be published soon. Publication will be announced in the next newsletter.

Further to the above, CLLAN has been actively involved in the development of two other abstracts that are both available online:
  1. Abstract developed in partnership with ALAN and CML Advocates Network entitled ”Experiences and Views of Leukemia Patients_ A Global Survey”. This abstract has also been approved for poster presentation at ASH. Link to the abstract: https://ash.confex.com/ash/2022/webprogram/Paper163309.html
     
  2. Abstract developed within the HARMONY ALLIANCE, a European Public-Private Partnership for Big Data in Hematology that CLLAN is an active member of. The abstract is entitled ”Pan-Stakeholder Core Outcome Set (COS) Definition for Hematological Malignancies within the Framework of Harmony and Harmony PLUS Projects”. Link to the abstract: https://ash.confex.com/ash/2022/webprogram/Paper157549.html

We would like to thank CLL patients and patient organisations that have supported this work by distributing and contributing to surveys and providing feedback and information to evidence the study poster publications’ findings, summary conclusions and recommendations.

 

Now available: video recordings for December 2022 CLLAN webinars

Recording now available: CLLAN December 2022 webinar on “CLL treatment in the relapsed-refractory setting and promising therapeutic approaches to fulfil unmet needs”


On 6 December 2022, CLLAN hosted a webinar on “CLL treatment in the relapsed-refractory setting and promising therapeutic approaches to fulfil unmet needs”.

This educational session discussed advances in how relapsed/refractory CLL patients and those who fail a treatment are treated today. What therapies are used for subsequent treatments and what promising new developments may fulfil unmet treatment needs?

Watch the recording:

 
 

Recording now available: CLLAN December 2022 webinar on “How are advances in Bruton’s tyrosine kinase targeted therapies continuing to change how chronic lymphocytic leukemia (CLL) is treated?”


On 7 December 2022, CLLAN hosted a webinar – “How are advances in Bruton’s tyrosine kinase targeted therapies continuing to change how chronic lymphocytic leukemia (CLL) is treated?”.

The webinar aimed to explain in an understandable way the basic science behind BTK targeted therapies in use or study today to treat CLL. What different descriptions mean, how treatments work, how they are used and latest developments.

Watch the recording:

 
 

We are proudly welcoming a new member:
The CLLAN now counts 48 members from 39 countries!

 

Asociación Mexicana de Lucha Contra el Cáncer – AMLCC (Mexico)


Founded in 1972, the nationalwide organisation “Asociación Mexicana de Lucha Contra el Cáncer” / “Mexican Association for the Fight Against Cancer” (AMLCC) is committed to help cancer patients in Mexico while specifically focusing on the most vulnerable sectors of society.

Their vision is to be the leading organisation in the fight against cancer that works in an allied way, to avoid preventable cancer deaths.

To learn more about AMLCC, please visit their profile in our members section.
 
 
 

NOT YET A CLLAN MEMBER?


Become a member and benefit from the many benefits! Please refer to our website to learn more about the types of members and member rights. We look forward to receiving your member application and welcoming you to our network!
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