DONOSIMO NAJNOVIJI BILTEN ALAN-A (ACUTE LEUKEMIA ADVOCATES NETWORK)

 U nastavku možete pročitati bilten br. 5 međunarodne organizacije za akutne leukemije – ALAN, sa novostima i obavijestima koje se odnose na zajednicu oboljelih od akutnih leukemija.
Tako možete pročitati članak o kvaliteti života oboljelih od akutnih leukemija, aktivnostima oko nadolazećeg Svjetskog dana akutne mijeloične leukemije (AML), kao i o drugim događajima i aktivnostima iz praćenog područja.
 

Ukoliko ima zainteresiranih, možete se pretplatiti na primanje biltena na Vašu e-mail adresu.
Dražen Vincek

 

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Newsletter Vol.5

Welcome to the first issue of the 2023 newsletters by ALAN. We aim to bring you updates from across the acute leukemia community, whilst keeping you informed on work and projects our side.

 

Quality of life in patients with acute leukemia

In 2019, ALAN ran a global survey to determine which factors are most associated with poor quality of life (QoL) in patients with acute leukemia and to determine key issues and unmet needs.

Our data show that younger patients, women and those with low income reported worse QoL than their counterparts. Feeling of social isolation and barriers to physical activity were noted to be most impactful issues.

When treating patients with acute leukemia, physicians should keep in mind the importance of social functioning and connect patients to resourceful and applicable patient organisations.

Read full article
 

AML World Awareness Day

21 April 2023

AML World Awareness Day is the one day of the year when people from all around the world come together to help raise awareness of this cancer.

Help us raise awareness of AML and encourage peer support globally during the #MyStoryOurJourney campaign by sharing your journey, your way.

What is AML ?
 

Global Summit

Register
 
 
Start Survey
 
Apply here
 

Thank you to all our supporters !

We thank you for your continuous support and look forward to continue our journey together.

Our supporters
 

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