WORLD CLL DAY 2023 is only few weeks away! 

Join us on World CLL Day 2023 as we shine a spotlight on the mental health challenges faced by patients living with chronic lymphocytic leukemia (CLL). Under the hashtags #WCLLD23 #WithTeamCLL and #MentalHealth, we aim to raise awareness and support patients impacted by this condition.

Visit the dedicated World CLL Day website to access valuable information, downloadable materials, and online resources, and discover how you can get involved in the lead-up to 1 September 2023.

To ensure you’re fully prepared, we’ve put together a Toolkit in the lead-up to #WCLLD23.

What to do in the lead-up to WCLLD 2023: 

• Add the #WCLLD23 Twibbon to your profile picture 
• Update your Twitter, Facebook & LinkedIn accounts with the #WCLLD23 Head Banner
• Download the Lead-up Social Media Content Plan which includes posts and visuals that you can share on your social media channels during the month of August in the lead-up to 1 September.
• Use editable Canva assets to customize the #WCLLD23 social media visuals. You can translate your favourite visuals into your own language and incorporate your organisation’s logo.

World Leukemia Day on 4th September is a global campaign run in collaboration by patient groups from across the globe. CLL Advocates Network (CLLAN) is one of the initiators.

It’s the one day of the year people from all around the world come together to help raise awareness of leukemia. This year’s World Leukemia Day theme is “What does leukemia mean to you?” Despite the fact that all leukemias present differently and affect patients in a different way, on this World Leukemia Day we want to come together with groups across the globe to advocate for all leukemia patients, raise awareness of the typical symptoms and bring together the international leukemia community.

We hope that by making people more aware of the signs and symptoms of leukemia, we will encourage them to get to see a doctor at first symptoms. This will help reduce the numbers of preventable leukemia deaths across the world and improve patients´ outcomes. 

Find out more about getting involved this World Leukemia Day:

• Share your leukemia story
• Download and use our graphics
• Take a spotty selfie
• Tell us what leukemia means to you

The International Workshop on Chronic Lymphocytic Leukemia (iwCLL) is holding its annual meeting 6-9 October 2023 in Boston, Massachusetts, United Stated. Thanks to the hybrid character of the event, virtual attendance is possible. Patient advocacy organisations can benefit from a special discount on the registration fee if registering via CLLAN. Furthermore, CLLAN is covering the registration costs for its members.

For more than 40 years, the iwCLL has focused on bringing together international leaders in the understanding and treatment of chronic lymphocytic leukemia (CLL). The 2023 assembly will present the most up-to-date results emerging from clinic and laboratory-based research about the pathobiology and treatment of this still incurable disease. The information presented will focus on the development, progression, treatment, and evolution of CLL. CLLAN has been invited to participate as Faculty for Session 10 (“Global Perspective on CLL Management – Real World Data and Patient Experiences” – Session Co-Chair: Anna Schuh, MD, PhD), and has furthermore submitted an abstract entitled “Global Perspectives through multi-stakeholder mapping of lived experience with CLL – insights to improve equity, services, and unmet needs”. The abstract has been accepted for poster.

Patient advocates are entitled to attend this event in-person or virtually. If you register via CLLAN, you will be entitled to a 50% discount from the usual rate ($200 instead of $400 if registering before Sept 2029, $250 instead of the usual $500 if registering after Sept 30). These rates are applicable for virtual or in-person attendance. For members of the CLL Advocates Members, CLLAN is willing to cover the registration fee (one grant-recipient per organisation allowed only!).

If you are representing a patient advocacy organisation (no matter if a member or not of CLLAN) and are interested in attending this important congress, please complete the online form by 15 September so that we can consider you for the group registration. 

For more details on the congress, please visit the iwCLL2023 congress webpage.

The 65th ASH Annual Meeting and Exposition will take place in San Diego, California, and online, December 9-12, 2023. This is one of the most important (if not THE most important) global event, and the best source for latest updates on hematology. ASH is again kindly offering free registration to non-profit patient organisations. We can only encourage you to take advantage of the ASH organizer´s offer (which has become a reality thanks to the persistent efforts of leading advocates).

Participants will have the opportunity to attend the meeting in-person or virtually. In-person registration includes complimentary access to the annual meeting virtual platform through January 1, 2024. Access to the virtual platform will begin on December 6, 2023.

Only one (1) recipient per each non-profit patient advocacy organization will be approved!

The application will require the completion of an online form that outlines the qualifying credentials to be considered, along with a CV resume or bio sketch, and a signed letter from the organization on its letterhead that specifies the following:

• That the organization is a non-profit patient advocacy organization.
• The applicant’s role with the organization.
• That the applicant is the sole representative that will be applying.

At the beginning of each month, ASH staff will review the applications received to date, select meritorious recipients, and inform the approved applicant how to proceed with registration.

Here is the Link to apply.
 
With this link you can apply for a complementary registration for the on-site event OR for the virtual meeting (during the application process you are asked which option you prefer).

This is a unique opportunity for all advocates, and we strongly encourage you to participate in the ASH Annual Meeting and Exposition whose commitment is to foster knowledge-sharing across the global oncology community to promote the delivery of high quality and equitable cancer care as we collectively work to conquer cancer. 

For more details, please visit The American Society of Hematology (ASH) website.