Lymphoma Coalition is delighted to share the first newsletter of 2025 which includes updates from current projects with our stakeholders to upcoming conferences and events as well as information about various initiatives that may be of interest to you.

You may notice a new look and feel to this newsletter and that is because LC is now using a new platform for the newsletters which will also help support the updated website that will be rolling out in February (more about that if you scroll further down)! As always, LC welcomes any feedback you have to ensure the content and design is relevant and accessible to you.

Thank you for your continued support,
Lymphoma Coalition Team

Global Cancer Coalitions Network (GCCN): COVID Impact Survey

With the five-year anniversary approaching, since the WHO declaration of COVID-19 as a pandemic, GCCN is revisiting issues raised by patient advocacy organisations to find out what the lasting impact of COVID-19 has been on critical functions like funding and services.

GCCN also wants to get a sense of patient advocacy organisations’ priorities going forward and any new challenges that may be emerging. The survey will be closing in two weeks, so please spend a few minutes and complete the survey today!

The survey will run until 14 February.

Website Update – Coming Soon!

Lymphoma Coalition is excited to announce that the updated LC website will officially launch later this month! The refreshed site will offer a platform that’s more intuitive, accessible, and packed with resources to better serve Members, patients, caregivers, healthcare professionals, and advocates in the lymphoma community.

What’s New? 

• Easier navigation to find the information you need
• Enhanced research sections with the latest data and insights
• Improved accessibility to ensure an inclusive experience

A big thank you to those of you who expressed interest in reviewing and taking the time to share initial feedback during the development process. Your insights have been invaluable in shaping the new site. We can’t wait for all Members to explore the new resources, tools, and design. The refreshed website will launch later in February. Keep an eye on social media for more information!

LC Wants to Hear from You!

Member Toolkits: Share your topic ideas!

2025 Global Summit: Share your input!

LC is proud to continue empowering the global lymphoma community with better tools and resources.

LC will be updating and developing new educational toolkits to better support Members in their work with patients and care partners.

These toolkits will include templated materials such as expert-led videos, plain-language resources, and accessible, practical content designed for direct use in education and outreach.

To ensure these resources are as valuable and relevant as possible, LC invites you to share your input on the topics and formats that would best meet your needs.

A Global Summit Planning Task Force is being established to ensure the 2025 Global Summit program reflects the diverse needs, interests, and priorities of Lymphoma Coalition Members.

The goal of this task force is to amplify Member voices, ensuring that each participant’s perspectives are heard and that everyone gets the most out of the Summit experience.

Comprising six representatives from Member organisations, the Task Force will play an important role in shaping a meaningful, interactive and inclusive program.

➡ Interested in joining the Task Force? Let us know if you’d like to contribute, considering the time commitment and active role required.

➡ Have ideas for the Summit? Share your thoughts on session topics, formats, and key discussions you’d like to see.

Take a few minutes to complete our quick survey and help shape the 2025 Global Summit!

2024 Global Health Expenditure Report

LC released a new report last month, titled, Spotlight on Healthcare Spending, Financing, and Function in the Lymphoma and CLL landscape. In addition to the report being available for download on the website, a short (4-minute) video is also now available for viewing. The video acts as a quick highlight, shining a light on some of the key areas the report covers, offering an engaging overview of the disparities in healthcare spending and its impact on lymphoma and CLL treatment and care.

To learn more, you can download the full report in both A4 and letter size file format here.